Always gotta be something!!

We got the CT Scan results Saturday afternoon.  It seems that Casey's stomach is in an abnormal position?!  Anyone know what that means?  There is also an "issue" with the left side of his stomach.  We were assured it was not cancer but the coordinator could not properly interpret the results.  We will have to wait until tomorrow when he goes back to the Liver Clinic!  Ugh!  When will he ever feel better?!

Whew!

Casey's appt went very well today!  He is fine liver-wise!!!  THANK GOD!!!  Due to all his meds, he has peptic ulcer disease.  It is very common and he just needs to start taking nexium.  He also had a UTI...which is where the back pains and pain during urinating came from.  The Nexium will take a couple of weeks to kick in.  Please pray for the pain to subside a bit.  It's hard for him to cope with sometimes.  Thank you for your continued prayers!  ♥

Here we go again...

Family and friends, pardon me for not updating sooner.  We have been really busy packing and then moving and then unpacking!  Ugh!

Casey was doing fine for a long while but the beginning of July he started feeling some pain in his lower back.  It would come and go.  Then later came the pain in his stomach after drinking or eating, regardless of how small the portion.  This pain comes and goes as well.  He has some pain during urination and his urine is a dark color. (not a good sign)  He has lost 10 pounds since July since he can't eat very much without it causing pain and discomfort. The last few days he has been feeling drained and extremely tired.  These symptoms are all the same symptoms as before the 2nd liver transplant. I'm trying to remain strong and positive but I'm so scared!!!

He has an appt tomorrow at Baylor Hospital for labs and liver clinic and then a CT Scan.  Please everyone, please keep him in your prayers!  He has been through so much already.  We don't need a reoccurrence!!!

Hasn't He Been Through Enough Already?!

Both Casey and I have been really scared the last week.  He has not been feeling well.  It was a little hard for him to describe his pain but I will do my best to describe to you.  He has a knot or ball on his shoulder that radiates a sharp pain all the way down to his stomach.  He can't eat much or his stomach starts to hurt.  He had a bout of dizziness last night while sitting in his favorite red recliner!

He had to make an Oncologist Appt for today.  He goes in for a CT Scan and a bone scan and blood tests.  We are still waiting to hear from the wound specialist on the results of his xray.  On a good note, his blood tests that he has to take every two weeks with his family doctor were great!  Only his cholesterol and triglycerides are high.  We BOTH need to eat better and exercise...but who can do that when we are always stressed and tired!!!  Please keep us in your prayers!

Big Daddy is back...

Casey is doing really well!  He was released from having to wear the "murse" on Tuesday!!  That's right folks...no more wound vac!!  Yippeee!  His hernias have not been bothering him lately so he has not had to wear the "mirdle" either!  He feels like a man again!! 

His hair is growing back a little faster now.  He has a nice little beard coming in that  he's trying to grow into a gotee.  He's not happy about the amount of gray hair coming in, though.  The hair on his head is growing in a lot thinner and softer!  We'll see how long he will allow it to grow before he shaves it off again!  He grew accustomed to that look.  He is starting to look normal again...his eyebrows are back as well! 

His only complaint right now is that he can't sleep.  Because of the steroids he has to take, he becomes restless at nights.  He runs out of his prescription Ambien too quickly and has to wait until a month after prescribed to refill again. 

Things will never ever be the way they used to be; but I can't wait until he can feel completely well!!

Update on Swelling

Casey's transplant coordinator never called back!  That's nothing new! When he went in for his wound care appt., the wound specialist said that his swelling ankles and feet were nothing to be concerned about.  If the swelling was going away at nights, then it was just his diet.  He needs to cut back on the amt of salt he consumes and drink more water.  Water sure is important in our bodies!  I wish water tasted like coke, then I would drink gallons of it everyday!  LOL! 

When we finally got in touch with one of the coordinators, she confirmed what the wound specialist had said.  The swelling has not returned.  But Casey, being the stubborn man he is, did not ask about the cramps in his chest!  He said it didn't cramp at the time so he didn't think to ask!  UGH!  Men! 

He had another wound care appt this morning.  His wound is getting better and better!  It's not as deep or as long.  The size of the sponge they have to insert in it for the wound vac gets smaller every visit...that's a very good sign!!  Please keep him in your prayers!  We need his wound to totally heal so that they can operate on his hernias!

When it rains it pours...

It's been very hectic the last few months.   Things seem to keep happening to us...one thing right after another.  I won't bore you with the details.  But during all this stress, one thing was certain, Casey was doing better and better each day...or so we thought.  I'm a little concerned now.  He has complained of muscle cramps in his chest around the heart...and now his ankles and feet are swollen.  He has had the cramps on and off for a while but the swelling started last night.  Neither of these symptoms is good....it either points to heart failure or liver failure.  His liver numbers have been slightly elevated for the last two labs he has done. We have contacted his doctor and coordinator and are just waiting for them to return our call. Please keep Casey in your prayers! ♥