Possible Pain Relief Soon

If you couldn't tell, I was very frustrated when I wrote the last two blog posts. I think I have simmered down some. Casey's whole ordeal starting since September 2008 has just gone way beyond what anyone would have imagined!

He had a couple of appointments today. The first one being with the wound specialist.  His open wound has had no improvement.  It is still about 5 inches long and a couple of inches wide OPEN!  Even with the wound vac, there has not been any improvement!  This is very discouraging!  If it weren't for him having to have 6 more rounds of chemo, the healing process would have been so much quicker. 

I have some bad news to share and some good news to share.  I will start with the bad and soften the blow with the good.  The bad news is that he will not be able to have any kind of surgery on his hernias, which are the cause of all his excruciating pain right now, until after his last chemotherapy AND until his wound is totally healed up!!  At the rate he's going now, he will not be able to have surgery on his  hernias until  next year!!  I just can't imagine him having to be in pain for that long!!  The good news is that the Dr. prescribed him stronger pain meds and a wrap to secure his hernias.  The doctors did not want to prescribe him anything stronger than hydrocodone because it's bad on the liver.  For those of you who pop tylenol like candy, please be careful...it is very bad on the liver!  And Advil is very bad on kidneys...just sayin'!  The wrap should help the pain alot.  The last few days he has had very bad allergies and has been coughing and sneezing like crazy!  Poor thing nearly goes down to his knees because of the pain when he sneezes!  He can even feel something protrude out when he holds his tummy to cough or sneeze. 

I can't imagine what God's plan is for us.  After all that we have endured the last few years, I don't think we can handle any more bad news!

What my blog is all about

My blog is a chance for me to spill my guts about how I FEEL about everything that has been going on with my husband.  Blogging is much like writing in a diary.  I express my thoughts, opinions, concerns, and most of all my feelings about things that are going on in my life.  Doing this helps me cope; it helps me open up; and it helps me not keep my feelings bottled up to where I explode later.  This blog just so happens to be about the trials and tribulations that my husband and I have had to endure the last couple of years.  No matter who it appears I am blaming for his physical and mental anguish, of course I am THANKFUL to GOD that he is alive and am thankful that the doctors were able to save him.  The fact of the matter is that we put all of our trust and faith into doctors and hospitals.  We do not expect to come out of there with an illness that we didn't have when we first went in there because of  something that was overlooked! Casey is my everything, he is my world, and I care about his pain more than I care of my own!  Of course, people are entitled to their own opinions. If anyone disagrees with my thoughts and opinions, please keep to yourself and do not attack me personally; as this is MY blog about MY opinions, MY thoughts, and MY feelings.  And if it seems I am whining; well, so be it!  After all we have been through, we definitely have room to whine!

STUPID CANCER/CHEMO

I AM GOING TO BLOG IN ALL CAPS TODAY BECAUSE I AM SO FRUSTRATED!!! MY HUSBAND CASEY HAS BEEN IN SO MUCH PAIN FOR SO LONG AND ALL BECAUSE HIS FIRST LIVER TRANSPLANT AT BAYLOR, WHICH BAYLOR IS SUPPOSED TO BE WELL KNOWN FOR, GOT SCREWED UP SOMEHOW!!!  THE LIVER DONOR THEY USED HAD  LUNG CANCER!!  THEREFORE, THE LUNG CANCER THAT HAD  METASTICIZED TO THE DONORS LIVER WAS "SOMEHOW" MISSED AND THEN TRANSPLANTED INTO POOR CASEY!!!  BECAUSE OF THIS, WE HAVE HAD TO ENDURE SO MUCH PAIN AND ANGUISH!  HE RECEIVED ANOTHER LIVER TRANSPLANT TO REMOVE THE CANCEROUS LIVER, BUT IS STILL HAVING TO GO THRU CHEMOTHERAPY!  BECAUSE OF THE CHEMO, HIS WOUND IS NOT HEALING.  HE HAS AN OPEN WOUND THAT IS AN OPEN INVITATION FOR INFECTION...ONLY TO CAUSE MORE PROBLEMS!!  BECAUSE HIS WOUND IS NOT HEALING QUICK ENOUGH, HE HAS DEVELOPED TWO HERNIAS WHICH ARE CAUSING HIM TO BE IN CONSTANT PAIN!!  BECAUSE OF THE MEDS HE IS TAKING AND THE EFFECTS OF THE CHEMO, HE  CANNOT SLEEP.  MY POOR HUBBY IS A MESS...HE IS IN PAIN, CAN'T SLEEP, HAS DARK CIRLCES UNDER HIS EYE, WALKS HUNCHED OVER...ALL THIS HAS NOT ONLY TAKEN A TOLL ON HIM BUT ON ME AS WELL!!  IT DEPRESSES ME TO SEE HIM IN SO MUCH PAIN...KNOWING THERE IS NOTHING WE CAN DO ABOUT IT. AND  AS IF THAT IS NOT ENOUGH!  I STRESS OUT ABOUT HAVING TO PAY THE MEDICAL BILLS AND PRESECRIPTIONS AND COPAYS...IT SURE AS HELL IS NOT BAYLOR...WHO PUT US IN THIS SITUATION IN THE FIRST PLACE!!!! 

The "Murse" is Back!

The man purse is back in Casey's wardrobe!  He went back to the wound specialist today.  The top of his wound is just not closing up!  It looks disgusting!  The doctor scraped all sorts of dead tissue out of there and recommended the wound vac be put back on! :-(  Casey was not a happy camper!

This whole day sucked!!!  It started off rushed and then just got worse and worse!  Casey's lab appt ran about an hour late, then the stupid Craigslist people we were waiting for never came and wanted us to come to them!  WTF?  I have never heard of someone asking you to deliver something bought off Craigslist!  Someone even wanted us to go all the way to Ft. Worth!  It would cost us more in gas to go all the way over there than the thing was worth!!  Ugh!  I'm so tired of people!  That is not even why our day was so bad...but that is a whole other blog!

Casey is still in constant pain from his hernias.  They can't do anything about them until after his last chemo next month. (He has a chemo treatment tomorrow.) All he can do is take a pain pill when the pain becomes unbearable.  Poor guy walks hunched over! :-(  Please keep him in your prayers!

Casey Can't Win For Losing!

Casey had been in pain around his incision area for a couple of weeks.  We thought it was just because of the muscle not being healed up yet...but turns out he has two hernias!  During his weekly visit to the wound clinic, the doctors took a close look at it and decided to send him to get a CT scan done.  In order to do this, they had to remove the Wound VAC.  Casey was so excited to get rid of the murse (man purse)!!!  Doctors said that the wound was looking a lot better so he may not have to have the Wound Vac put back on.  But the wound is looking pretty nasty this morning so the murse may have to be a part of his wardrobe for a little while longer!

As for the hernias, they are small according to the CT Scan.  Doctors will not begin to deal with them until he has finished all his chemo treatments.  So he has to be in pain until next month sometime!!  Pain killers dull the pain but not enough to go on with his normal daily activities.  My poor hubby, he can't win for losing!  It's always one thing or another!  Please keep him in your daily prayers!